By bluerasberry on 2014-11-21
Earlier this year the National Museum of American History took in some artifacts related to LGBT history. I saw the news when it was reported, and was glad for that, but also surprised that this needed announcing or that the idea was new. On Tuesday 18 November I visited the museum with Dorothy and we […]
Posted in DC, gay stuff, museum, research, rights, Wikipedia | Tagged Dorothy Howard, Smithsonian
By bluerasberry on 2014-08-12
I talked to some Wikipedians from India at the Wikimania conference. I asked them about the relationship between Wikimedia India, the Wikimedia community in India, the Wikimedia Founation, and the Centre for Internet and Society, a nonprofit organization in India which manages some Wikipedia affairs there. They told me about general conversations among participants in […]
Posted in India, Wikipedia | Tagged Wikimedia chapter
By bluerasberry on 2014-07-28
If you are thinking of doing research on Wikipedia’s editor community, please read this. It is easy for researchers to harm Wikipedia’s editing community by disturbing our projects, so please be mindful that your project can cause trouble if you do not take precaution and show compassion to the volunteers who are in this space. […]
Posted in research, rights, Wikipedia | Tagged informed consent
By bluerasberry on 2014-07-27
I am concerned about researchers recruiting Wikipedia community volunteers as human subject participants in their research when they need people to take surveys or be interviewed. The major problems with research on the Wikipedia community is that time in research is time taken away from Wikipedia community activities and research done by outsiders to the […]
Posted in research, rights, Wikipedia | Tagged survey, volunteer
By bluerasberry on 2014-07-27
After meeting Nick at home I started thinking to myself about what projects I am doing which relate to large data sets so that I could see the extent to which I had some ground for collaboration with him and others in this space. My primary pursuit is public is facilitating public access to information, […]
Posted in clinical research, health, Open access, quantified self, Wikipedia | Tagged activity tracking, big data
By bluerasberry on 2014-05-05
Wednesday 30 April to Friday 2 May I was in DC for a Choosing Wisely meetup. Part of it was hosted by ABIM Foundation and part was hosted by Consumer Reports. When I was there I met other people who work in health communications and we talked about how we get messages to people. One […]
Posted in Consumer Reports, DC, health, Wikipedia | Tagged advertising, Douglas Rushkoff, Kevin Kelly, social media, youth
By bluerasberry on 2014-04-11
I had two articles recently published in BMJ. Rasberry, L. (2014). “Wikipedia: what it is and why it matters for healthcare”. BMJ 348 (apr08 3): g2478–g2478. doi:10.1136/bmj.g2478. ISSN 1756-1833. Rasberry, L. (2014). “Citing Wikipedia”. BMJ 348 (mar05 4): g1819–g1819. doi:10.1136/bmj.g1819. ISSN 1756-1833. That first paper is behind a paywall but the second one can be […]
Posted in health, research, Wikipedia | Tagged BMJ, David Menkes, license, publishing
By bluerasberry on 2014-04-05
I was invited to speak at the conference on Tuesday 1 April. I was on a panel called “Partnering with Patients: What do you need from each other?” The description to the talk asked, “When it comes to engagement in clinical trials, are pharmaceutical executives getting it right or are we leaving a huge amount […]
Posted in clinical research, drug, health, Las Vegas, presentation, Wikipedia
By bluerasberry on 2014-01-25
For traditional educational organizations, it is easy to create high quality information content but difficult to disseminate them to the right audience. For Wikipedia, it is easy to disseminate information to the right audience, but difficult to create high quality information content. Which ability is more useful?
Posted in health, Open access, Wikipedia | Tagged text
By bluerasberry on 2014-01-11
Wikipedia could be used as a channel for conducting and managing information requests. This has not been done previously. I would like for it to be done in the future. This post is three of three in a series, and this one talks about Wikipedia and information requests. In other posts I describe MuckRock as […]
Posted in biobanks, clinical research, research, Wikipedia | Tagged informed consent