By bluerasberry on 2013-09-17
The Preventing Overdiagnosis was held at Dartmouth from 10-12 September. Consumer Reports was a sponsor of the event, as was Australia’s Bond University and BMJ. I was scheduled to speak about Wikipedia and health. There is a concept in medical literature called “overutilization” which refers to overuse of medical resources. This includes overtreatment, which is […]
Posted in clinical research, health, research, rights, Wikipedia, work | Tagged Choosing Wisely, public health
By bluerasberry on 2013-06-29
Someone at Eli Lilly and Company was contacting Wikipedians about a partnership between Lilly and Wikipedia. Some people may not know that Wikipedia is a nonprofit project stewarded by the nonprofit Wikimedia Foundation, and that since its founding it has taken a strong stance against hosting external advertising and against entities with a conflict of […]
Posted in clinical research, health, research, Wikipedia | Tagged Eli Lilly and Company, global health, Wikidata
By bluerasberry on 2013-06-29
A Lilly person was visiting Wikipedia and I wrote this post for their blog. See the original publication on the Clinical Open Innovation site. A Unique View on Improving Communication With Clinical Trial Participants Lane has participated in more than 40 clinical trials as a healthy volunteer, as well as worked on the research team […]
Posted in clinical research, research, rights | Tagged bioethics, clinical trial, informed consent
By bluerasberry on 2013-05-14
The 2013 conference for the HIV Vaccination Trials Network (HVTN) was from May 7-9 in Washington DC. I attended. My friends from the Seattle CAB Victoria Chinnel and Lisa White came to the event. The big news was that only one week before HVTN 505, a major phase II vaccination trial, had just ended all […]
Posted in clinical research, DC, HIV, research, Wikipedia | Tagged conference, HIV vaccine, HVTN
By bluerasberry on 2012-11-05
The 2012 Seattle HVTN conference was from Monday 29 – Wednesday 31 October. I went to Seattle for that and to see friends. I flew to Portland on Friday 26 October to attend the Wiki Loves Libraries event organized by Jason Moore, user:Another Believer, on Saturday 27 October. We went out for breakfast, did the […]
Posted in clinical research, HIV, legal, non-profit, Open access, research, rights, Seattle, Wikipedia, work | Tagged Adbusters, Brian Glanz, Christopher Sheats, coffee, conference, HVTN, Jacob Caggiano, Lisa White, Open Knowledge Foundation, Patrick, Patrick Earley, Victoria Chinnell
By bluerasberry on 2012-04-22
I soon move to New York City to work as Wikipedian in Residence for Consumer Reports. A Wikipedian in Residence is a Wikipedia ambassador to an organization. In my case, I will work at Consumer Reports and help the organization establish relationships with Wikipedia. Consumer Reports is a famous United-States based consumer advocacy group. It […]
Posted in biobanks, clinical research, Seattle, Wikipedia, work | Tagged bioethics, blood, campus ambassador, malaria
By bluerasberry on 2012-03-25
Peggy Porter spoke representing the Consortium Biospecimen Resource (CRS), which is a biobank housed at Fred Hutchinson Cancer Research Center. She said that the organization has good procedures in place to conduct informed consent, collect specimens, and manage the sharing of specimens to researchers, but in her organization and in the industry in general there […]
Posted in biobanks, clinical research, education, health, presentation, research, rights, Seattle | Tagged net generation, social media
By bluerasberry on 2012-03-24
John T. Slattery is a member of the Department of Bioethics & Humanities at the University of Washington and of the Washington Phenotyped Biospecimen Resource. He was one of the speakers at that Friday 23 March communication conference. He spoke about a need to increase the information available to and usable by people receiving healthcare […]
Posted in biobanks, clinical research, education, Seattle | Tagged bioethics, conference, free as in freedom, John Slattery, open source
By bluerasberry on 2012-03-24
Yesterday Friday 23 March there was an informal meetup for people interested in ethics, biobanking, and modern media in Seattle. It was by invitation. I think most people who attended knew many of the other people in the room, and what I took away from the meeting was that we all share a common problem […]
Posted in biobanks, clinical research, health, presentation, research, Seattle | Tagged biotech, conference
By bluerasberry on 2012-03-12
On three of us members of the HIV Vaccine Research Unit Community Advisory Board made a video to inform potential new members about what it would mean for them to join our group. The video was to have two purposes – to introduce HIV vaccine research and to introduce the concept of layman meeting in […]
Posted in biobanks, clinical research, drug, education, non-profit, research, rights, Seattle | Tagged HIV vaccine, videography