By bluerasberry on 2014-01-11
Wikipedia could be used as a channel for conducting and managing information requests. This has not been done previously. I would like for it to be done in the future. This post is three of three in a series, and this one talks about Wikipedia and information requests. In other posts I describe MuckRock as […]
Posted in biobanks, clinical research, research, Wikipedia | Tagged informed consent
By bluerasberry on 2012-08-30
On Friday 24 August I have some appointments in DC but I went early so that I would not have to travel Friday morning and because Genetic Alliance was having a workshop to for members of organizations who want to talk about first steps in establishing a biobank. I attended this. Some well-established organizations were […]
Posted in biobanks, DC | Tagged biobank, Genetic Alliance
By bluerasberry on 2012-04-22
I soon move to New York City to work as Wikipedian in Residence for Consumer Reports. A Wikipedian in Residence is a Wikipedia ambassador to an organization. In my case, I will work at Consumer Reports and help the organization establish relationships with Wikipedia. Consumer Reports is a famous United-States based consumer advocacy group. It […]
Posted in biobanks, clinical research, Seattle, Wikipedia, work | Tagged bioethics, blood, campus ambassador, malaria
By bluerasberry on 2012-03-25
Peggy Porter spoke representing the Consortium Biospecimen Resource (CRS), which is a biobank housed at Fred Hutchinson Cancer Research Center. She said that the organization has good procedures in place to conduct informed consent, collect specimens, and manage the sharing of specimens to researchers, but in her organization and in the industry in general there […]
Posted in biobanks, clinical research, education, health, presentation, research, rights, Seattle | Tagged net generation, social media
By bluerasberry on 2012-03-24
John T. Slattery is a member of the Department of Bioethics & Humanities at the University of Washington and of the Washington Phenotyped Biospecimen Resource. He was one of the speakers at that Friday 23 March communication conference. He spoke about a need to increase the information available to and usable by people receiving healthcare […]
Posted in biobanks, clinical research, education, Seattle | Tagged bioethics, conference, free as in freedom, John Slattery, open source
By bluerasberry on 2012-03-24
Yesterday Friday 23 March there was an informal meetup for people interested in ethics, biobanking, and modern media in Seattle. It was by invitation. I think most people who attended knew many of the other people in the room, and what I took away from the meeting was that we all share a common problem […]
Posted in biobanks, clinical research, health, presentation, research, Seattle | Tagged biotech, conference
By bluerasberry on 2012-03-12
On three of us members of the HIV Vaccine Research Unit Community Advisory Board made a video to inform potential new members about what it would mean for them to join our group. The video was to have two purposes – to introduce HIV vaccine research and to introduce the concept of layman meeting in […]
Posted in biobanks, clinical research, drug, education, non-profit, research, rights, Seattle | Tagged HIV vaccine, videography
By bluerasberry on 2012-02-16
On Monday 13 February Sharon Terry of Genetic Alliance was in Seattle and gave a talk at the Public Health Cafe. The Public Health Cafe is a community science presenation organized by the UW Center for Ecogenetics and Environmental Science. I love it! I had seen Sharon’s YouTube video explaining why she got into the […]
Posted in biobanks, clinical research, education, health, non-profit, Open access, presentation, research, Seattle, Wikipedia | Tagged Genetic Alliance, Jon Izant, Public Health Cafe, Sage Bionetworks, Sharon Terry
By bluerasberry on 2011-11-30
I am all about biobanks now. A biobank is a type of biorepository which stores human biological specimens long-term for future research. I have been having encounters with biobanks for years and always had questions about them, and I have even had some conflicts with researchers on this topic. Recently I met someone who develops […]
Posted in biobanks, non-profit, research, Seattle, Wikipedia | Tagged NWABR, publishing, social media